The DFPS will be holding it’s AGM this Saturday.
You are welcome to attend.
Where: Kids Sense, 90 Unley Road
When: 10 am, 12th April 2014
Greg took part in another interview this week. ABC fielded several calls from sufferers who are experiencing a lack of support from the medical profession.
Listen to the Audio here
A great video has been uploaded to the ABC website.
Follow the link here
It has been a while since our last update to our community, and that is because we have been busy liaising with the relevant government bodies to implement a review body for decisions made by the DDU.
published an article this week.
You can read the article on the inDaily website.
InDaily has an article today about the recent Media Release from the offices of Geoff Brock MP and Kelly Vincent MLC.
The Independent Member for Frome Geoff Brock and Dignity for Disability MLC Kelly Vincent have today
called on the Minister for Health to trial a helpline for GPs stuck between a rock and a hard place when prescribing opioid and benzodiazepine medications for patients.
More and more Australians are finding out about Chronic Pain. This video was posted on the ABC website.
An interesting media post from the guys at FiveAA. You can listen to the clips on their website.
Even South Australians suffer whilst simply waiting to get access to doctors.
The 6th of March saw South Australians phone in to John Hill’s hotline, not to order pizza but discuss very important issues such as separation of staff, patient and guest toilets in hospitals as was mentioned on the radio the next day. As the Liberals put it, “The Minister seriously underestimated the level of grievance in the community over health issues”.
We also contacted John Hill and the Health department on Friday night through Twitter and funnily enough received a response at 6.30am the next morning. I guess the Health Minister’s work load increased significantly?
But sometimes this new fandangled technology just doesn’t do a good joke justice. . .
Our Tweet to John:
@JohnHillMP how are you helping chronic pain sufferers who are victims of beaurocrats? #dfps
And a joke of a response:
@mattyb_53 That’s what’s called a loaded question. Suggest you consult your GP.
Of course it is. Wikipedia defines such a question as “a question which contains a controversial assumption such as a presumption of guilt” . Are you saying our problem is controversial or is your party guilty of failing to act? Either way, not much is being done about it – hence the question.
We thought the whole point of asking a question on your ‘big phone in’ was to get some answers?
We can’t actually consult our GP’s anyway. Firstly they have no say in the outcomes and decisions made by the D.D.U., and secondly the decision to reduce dosages is left in the hands of Pharmacists who do not even understand the patient’s case history. Consulting my GP if I’m suffering from chronic pain simply doesn’t work!
But technology let us down. Twitter can’t handle a large scale rant like that. But we did laugh even harder when SA Health responded to our tweet as well:
@mattyb_53 SA Health always works with treating doctors to ensure pain patients continue to receive appropriate treatment
If that is the level of understanding high up in SA Health, I’m not laughing any more.
Good afternoon chronic pain sufferers, carers and advocates,
As per the article in page 4 of today’s Advertiser, tonight Minister for Health John Hill and his senior departmental staff will be taking phone calls between 5pm and 7pm.
It would be good if you could all call during these hours and explain your situation in a rational and calm way. This is your chance to get the message across that the guidelines and management of opioid prescribing and chronic pain in this state needs to change! I would suggest writing notes down before you call.
The free HealthChat number is 1800 175 399 and will operate between 5pm and 7pm.
Please forward this email on to any other chronic pain sufferers so they can call in too. I imagine the phone lines will be quickly engaged – keep trying. Those who can’t call during those hours can also tweet questions to @SAHealth or @JohnHillMP via twitter.
It is with deepest regret
and sympathy that we make this post.
The Hon. Kelly Vincent notified the upper house on Tuesday of the death of one of our pain sufferers. You can read the Hansard Extract.
The DFPS will not release the name of the individual who has passed away, however we offer our deepest condolences to their family and friends.
This now begs the question as to the response of the State Government and in particular the Drugs of Dependence Unit (DDU) on this sad news. The failed process currently in place has now cost the life of a human being and has had a sudden impact on others. To make it worse, despite initial dialog, nothing has been done to fix the process and other pain sufferers are contemplating similar methods to end their pain.
The current protocol and process is flawed and is simply unacceptable.